LBDA LEWY BODY DEMENTIA DIAGNOSTIC SYMPTOMS LEWY BODY DEMENTIA ASSOCIATION Caregiver Link: 800.539.9767 LBDA.ORG LBD SYMPTOMS CHECKLIST PATIENT INSTRUCTIONS Add a check mark next to any symptoms you are experiencing. Bring this form with you to your next appointment or send it to the doctor in advance. Cognitive Symptoms Forgetfulness Trouble with problem solving or analytical thinking Difficulty planning or keeping track of sequences (poor multi-tasking) Disorganized speech and conversation Difficulty with sense of direction or spatial relationships between objects Fluctuations Fluctuating levels of concentration and attention Unexplained episodes of confusion Excessive daytime sleepiness Parkinson’s-like Symptoms Rigidity or stiffness Shuffling walk Balance problems or repeated falls Tremor Slowness of movement Decrease or change in facial expression Change in posture Behavior and Mood Changes Hallucinations - Seeing things that are not really present Sleep Concerns Acting out dreams during sleep, sometimes violently, falling out of bed Reactions to Medications for Hallucinations (antipsychotics) Increased parkinsonism (stiffness, rigidity, etc.) Increased confusion Increased sleepiness The information set forth in this material is intended for general informational use only. It is not intended to be medical, legal or financial advice or to take the place of competent medical, legal or financial professionals who are familiar with a particular person’s situation. Each individual is advised to make an independent judgment regarding the content and use of this information. LBDA LEWY BODY DEMENTIA DIAGNOSTIC SYMPTOMS LEWY BODY DEMENTIA ASSOCIATION FOR PHYSICIANS There are two clinical diagnoses that fall within the Lewy body dementia spectrum. This form may be helpful in diagnosing one of those disorders - Dementia with Lewy bodies, or DLB. (The other form of LBD is Parkinson’s disease dementia.) When making a dementia diagnosis, check for medication side effects that may mimic LBD symptoms. A referral to a neurologist is recommended for a differential diagnosis. Dementia plus any one of the following is sufficient for a possible DLB diagnosis: •Fluctuating cognition with pronounced variations in attention and alertness •Recurrent visual hallucinations •Spontaneous features of parkinsonism •REM sleep behavior disorder •Severe neuroleptic sensitivity •Low dopamine transporter uptake in basal ganglia demonstrated by SPECT or PET imaging In addition to the features on the front page, the following are supportive features (commonly present but not proven to have diagnostic specificity): •Repeated falls and syncope •Transient, unexplained loss of consciousness •Severe autonomic dysfunction, e.g., orthostatic hypotension, urinary incontinence •Hallucinations in other modalities •Systematized delusions •Depression •Relative preservation of medial temporal lobe structures on CT/MRI scan •Prominent slow wave activity on EEG with temporal lobe transient sharp waves A diagnosis of LBD is less likely: •In the presence of cerebrovascular disease evident as focal neurologic signs or on brain imaging •In the presence of any other physical illness or brain disorder sufficient to account in part or in total for the clinical picture •If parkinsonism only appears for the first time at a stage of severe dementia When diagnosing Dementia with Lewy bodies, please use the following ICD-9 code combinations. (ICD-9 is subject to change with ICD-10): 331.82 – “Dementia with Lewy bodies” 294.1x – “Dementia” with the ‘x’ determined by presence (“1”) or absence (“0”) of behavioral disturbance. (NOTE: Not all insurance carriers process 294.1x codes the same way. Confer with a billing expert before using this code).
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