MEETING PROGRAMME MARCH 2015

University College London Hospitals &
Great Ormond Street Hospital for Children
How to get to ICH
NHS Foundation Trust
Entrance to Institute of Child Health
(30 Guilford Street, London)
WORKING TOWARDS A SINGLE GOLD STANDARD CARE
PROTOCOL FOR CHILDREN AND ADULTS
WITH ADRENAL INSUFFICIENCY
ALL WELCOME
YOUR INVITATION TO A MEETING
SATURDAY MARCH 14 2015
11:45 for 12:00 PM START
INSTITUTE OF CHILD HEALTH, LONDON
Professor Peter Hindmarsh
University College London Hospitals &
Great Ormond Street Hospital for Children
NHS Foundation Trusts
CAH Parents and Patient Support Group
http://www.cahisus.co.uk/
E-mail: cahisus@yahoo.com
https://www.facebook.com/pages/CAH-Great-Ormond-Street-Parent-and-Patient-SupportGroup/320900711287880
Professor Peter Hindmarsh
Early booking advised as places are limited. Unfortunately due to
the venue layout, no children under the age of 10 permitted. Note
this meeting is for all adults, families and parents of children who
are on cortisol replacement
Bookings can be made through cahisus@yahoo.com
PROGRAMME
UNIVERSITY COLLEGE LONDON HOSPITALS AND
GREAT ORMOND STREET HOSPITAL
Invite you to our meeting on
GETTING STEROID REPLACEMENT RIGHT
MINIMISING SIDE EFFECTS
A meeting to explore side effects of therapy, how
cortisol replacement can be measured and methods for
improving treatment
Date: SATURDAY 14 MARCH 2015
Venue: Kennedy Lecture Theatre
Institute of Child Health
30 Guilford Street
London WC1N 1EH
Follow our Facebook page for further details on the meeting as we go
into December and January
https://www.facebook.com/pages/CAH-Great-Ormond-Street-Parentand-Patient-Support-Group/320900711287880
11:45 – 12:00 Registration and Introduction
12:00 – 13:00 Presentation of Questionnaire
(findings from June 2014 meeting)
13:00 – 14:00 Lunch
14:00 – 14:30 Cortisol Replacement and Glucose
(Professor Peter Hindmarsh)
14:30 – 15:00 Measuring Steroids
(World Expert Dr John Honour)
15:00 – 15:30 Emergency Services and Care How it works
(Ambulance Services)
15:30 – 16:00 What we can do for Patients with Adrenal
Problems (Society for Endocrinology)
16:00 – 16:30 Implications of the NHS 5 year plan for
Emergency Care for Adrenal Patients
(NHS England)
16:30 – 16:45 Using a Pump to Deliver Hydrocortisone
(Professor Peter Hindmarsh)
16:45 - 17:00 Question and Answer Session
(Professor Peter Hindmarsh &
Dr John Honour)
We have some excellent data on the side effects from the meeting we held
in June 2014. We plan to explore the reasons why so many people
experience side effects and we believe we can help in preventing some of
these occurring.
The subject content of this meeting is for everyone on cortisol replacement
therapy, no matter what the cause. It covers both adult and children,
however please note that due to the venue layout unfortunately we are
unable to accommodate children under 10 years.
There will be no charge to attend this meeting, so come along for a great
afternoon, meet others, share ideas and for all who have asked, there will
be good coverage on using hydrocortisone infusion via the pump method.
Seats are limited and will be allocated on a first come first served basis. To
book please send an e-mail giving the names of those who you would like
to bring along and the condition that you are associated with.
Programme maybe subject to change.