AT YOUR Summer 2014 DOOR Message from the Executive Director Welcome to the summer edition of At Your Door. We’ve had an exciting 25th year at Hospice Toronto, and we were able to end on a high note with our TD presents There’s No Place Like Home gala event in February. Last edition we stopped to reflect on the 25 years Hospice Toronto has served Eleanor McCain and Matt Dusk perform at There’s No Place Like Home (photo: Glenn Bell) members of the Toronto community. Now, like how this spring’s flowers slowly but surely bloomed, we look to Last year alone, Hospice Toronto supported 1,175 individuals how Hospice Toronto can grow in the future. With the Unifor presents 12th Annual Hike for Hospice either living with a life-threatening illness or at end-oflife, also impacting the lives of over 5,000 family members recently enjoyed, and many upcoming opportunities to get and friends. Responding to promote access for Toronto’s involved with, Hospice Toronto is excited to begin our next multicultural climate, we now have capacity to serve clients in 25 years as leaders providing palliative care to the Toronto 29 different languages and have introduced our community community. development based “Creating Caring Communities” program With our healthcare system increasingly straining under the model. growing weight of an aging population and struggling to There are so many ways to get involved with Hospice Toronto! cope with the rise in chronic illnesses, the need for home Whether you are interested in helping our clients and their hospice palliative care in Toronto is greater than ever before. caregivers with daily chores, engaging our Young Carers in One day, we will all require care giving or be required to a fun group setting, or even lending a hand at one of our provide care for a loved one. With the overall need for home special events throughout the year, there is always a place for hospice palliative care and support intensified by our rapidly you here at Hospice Toronto. Contact us at 416-364-1666 to aging population, home hospice care is no longer simply learn more about how you can get more involved. about respecting a person’s wish to remain at home. When Hospice Toronto was first established, the primary focus was to provide people with end-of-life, home hospice palliative care and support. Increasingly each year, we find ourselves serving clients who, while they may still have years to live, are living with chronic illness that requires considerable support to remain independently at home: people living with ALS (Amyotrophic Lateral Sclerosis or Lou Gehrig’s Disease), HIV/AIDS, Alzheimer’s, cancer, congestive heart failure, and complications arising from diabetes. Chronic illness has become a new priority in home hospice care, and we are adjusting our services to reflect those needs. IN THIS ISSUE Now is a time to look towards the future with hope. Hospice palliative care is evolving to find better ways to support our loved ones and their caregivers, and to do this as valued partners in an increasingly integrated healthcare system. As always, we love hearing your stories, feedback, and input. If you have a story idea, comment, question, or suggestion, please email us at [email protected] Dena Maule Executive Director Hospice Toronto Event recaps: There’s No Place Like Home 2 Client Story; Faces of Hospice: Sybil Wilkinson 3 Spotlight on Young Carers 4 Why I Give: Steve Nardi; Legacy and Planned Giving Circle of Distinction winners 5 6 THERE’S NO PLACE LIKE HOME: HOSPICE TORONTO’S 25TH ANNIVERSARY GALA, RAISES OVER $70,000 Steve Nardi, Olivia Chow, Eleanor McCain and Pierre Campeau at There’s No Place Like Home On February 20th, 2014, at Toronto’s Bram and Bluma Appel Salon, over 300 guests and volunteers joined Hospice Toronto to celebrate 25 years of volunteer, home hospice care and palliative care and support. This year’s Honorary Chair, Eleanor McCain, wowed the crowd with her vocal talents and invited surprise guest Matt Dusk to share the stage. Gala MC Carla Collins acted as the evening’s congenial host, backed by the talented gene pool boys. Special guest and Toronto mayoral candidate Olivia Chow shared her own personal experiences with palliative care, TORONTO HIKE FOR HOSPICE 2014 RAISES OVER $47,000! by Richard DeLisle and Hospice Toronto volunteers were honoured for their service. Hospice Toronto thanks all of the event’s guests and generous sponsors - including presenting sponsor TD Canada Trust - for making the 25th Anniversary Gala a huge success! Over $70,000 was raised, making this year’s event one of Hospice Toronto’s best fundraisers to date, all in support of future groundbreaking, compassionate in-home care from Hospice Toronto. Photos by Glenn Bell. See more at facebook.com/hospicetoronto. This past May, thousands of Canadians across the country took part in the national Hike for Hospice movement, including participants in the Unifor presents 12th Annual Toronto Hike for Hospice in support of Better Living Health and Community Services, Hospice Toronto and Philip Aziz Centre / Emily’s House. A family-focused community event for all ages, this year’s Hike featured fabulous prizes for top fundraisers, live music, a barbecue, and the choice of participation in the 5 km or 2 km leisure walk in historic Cabbagetown. The annual Toronto Hike for Hospice offers not only an opportunity to raise awareness and funds, but it’s also a time to celebrate, remember, and hike on behalf of a loved one. This year, Hospice Toronto raised over $15,000 towards its programs (with over $47,000 raised in total by all the participating hospices). With the $15,000 raised by Hospice Toronto, using our Buy The Hour calculation of about $25 to provide one hour of in-home hospice palliative care, that’s 600 hours of support for people living with life-threatening illness, and their caregivers and loved ones. Hospice Toronto thanks everyone who generously donated their support to making this year’s Toronto Hike for Hospice such a success. Hospice Toronto staff and volunteers celebrate a successful Hike for Hospice. See you next year! 2 The 12th annual Toronto Hike for Hospice was hosted by Richard Ryder (103.9 PROUD FM and OUTtv), with music provided by Danny Marks. Generous support was provided by Presenting Title Sponsor, Unifor; Media Sponsor, 103.9 PROUD FM; and Partner Sponsors WestJet, Toronto Necropolis Mount Pleasant Visitation Centre, the Duke of Richmond Pub, Artik, GreedyGiver, Nature’s Path, Starbucks Coffee, Steve’s Music Store and Warner Bros. Entertainment Canada. HOSPICE TORONTO AT YOUR DOOR | Summer 2014 CLIENT FEATURE: BRIDGET’S STORY by Siobhan McPartland Bridget and her husband Mark live with their daughters Lily and Ruby in a purple house on a quiet, tree-lined street in downtown Toronto. Bridget spends her time in an upstairs bedroom, confined to her bed as a result of chordoma, a rare cancer that affects the spinal cord. Hospice Toronto social work intern Siobhan McPartland visited Bridget and her family to find out how Hospice Toronto has made a difference to them. Bridget emphasizes that her family’s well-being is paramount for her peace of mind. Her illness not only impacts her own daily living, but also affects her family significantly. Becoming housebound meant that Bridget gave up her own regular activities, including accompanying her two young daughters to school and extracurricular activities and events. Despite challenges, Bridget has maintained her contagious positivity. “It is easy to get caught up in the negative,” she says, “and we need the Hospice Toronto programs to lift us up.” Hospice Toronto is one of the few organizations that “comes to you,” notes Bridget. She appreciates that Hospice Toronto staff and volunteers recognize that her illness compromises her ability to engage in basic and fundamental activities, and that she feels isolated from her community at times. Hospice Toronto helps to ease her feelings of isolation, an experience common to individuals coping with illness. FACES OF HOSPICE: SYBIL WILKINSON by Katie Saunoris Bridget and family. (photo: Siobhan McPartland) In-home, Reiki, and expressive arts volunteers have been visiting Bridget on a weekly basis since September 2013. Arnie and Jacky, in-home volunteers, have enabled Bridget to stay connected through poetry, conversation, meditation and even Karaoke. Jennifer, an expressive arts therapist, and Sonja, a Reiki practitioner, made it possible for Bridget to continue practices that she had previously enjoyed outside of her home. Bridget notes that her Hospice volunteers always adjust their visits in consideration of how Bridget feels at any given time, and that they demonstrate compassionate understanding of her illness. Bridget’s children have benefitted from programs offered by Hospice Toronto’s Young Carers Program. Over the winter holidays, the entire family enjoyed two nights at the Royal York Fairmont Hotel, courtesy of the hotel’s annual Room at the Inn program. Bridget also spoke of her appreciation for the ways in which Hospice Toronto staff and volunteers have helped her to take the guilt away from being sick. Bridget shares that when Client Services Coordinator Noni visited and took the time to figure out what she needed, she felt truly heard. The kind and caring approach of Hospice Toronto staff and volunteers has been central in their support for Bridget and her family, helping Bridget feel happy and healthy. volunteer work with Hospice as a drop in the bucket compared to what I’ve received. I’m incredibly in awe of the support and respectfulness of the staff, of the entire organization.” When she isn’t assisting her Hospice clients, Sybil is incredibly active in the Toronto arts community volunteering her time at the Art Gallery of Ontario and Harbourfront Centre and supporting a project at Tarragon Theatre aimed at getting more visible minority youth to be part of the audience on an ongoing basis. She has logged over 35 years as an active volunteer, including her time with Hospice Toronto. Like many Hospice Toronto volunteers, Sybil Wilkinson first heard about Hospice “Hospice Toronto is special because we go Toronto when a loved-one needed into the client’s homes. We don’t make in-home care. “In 1996 my sister was the choices in someone’s care - we are diagnosed with late-stage cancer, and I called, and we’re there to give any help was referred to Hospice Toronto,”says and assistance possible. It’s not about Sybil. “I couldn’t believe such an judgment - they reach out and we’re organization even existed, and that a there to help them. Every volunteer is team could be pulled together so quickly specially trained and support is given to help our family. It was amazing to by the Hospice Toronto staff and see the quality of service the volunteers consultants as necessary.” gave, the physical and emotional support, “I’ve worked with incredibly wonderful Sybil believes that working as a Hospice the comfort level they provided...it’s Hospice clients. It’s very fulfilling to volunteer has revealed valuable life still overwhelming to talk about.” After give back and I feel so privileged to be lessons.“Being an in-home volunteer has experiencing the kindness and care of part of someone’s care. Volunteering Hospice Toronto’s services, Sybil decided to taught me how meaningful death is to for me has taken the fear of death away, every single one of us. As a volunteer, I undergo Hospice volunteer training and especially having seen people dying, and realize that declining health, and death, became an in-home volunteer in 1997. they aren’t dying angry. I am there with is part of life, and all of my clients have them as a volunteer, but I feel they’ve “After my sister died, it became - and taught me lessons about the acceptance helped me by sharing their lives. I’m not remains - my commitment to give back of illness and how to deal with illness giving, I’m getting a lot more than to Hospice Toronto in some way. I see my with dignity.” I could ever give.” 3 HOSPICE TORONTO AT YOUR DOOR | Summer 2014 THE YOUNG CARERS PROGRAM AT HOSPICE TORONTO An overlooked group of children and youth in Canada are starting to realize that they have a name and are not alone. Although the term ‘young carer’ is relatively new to North America, 12% of all children under the age of 18 in Canada are in a significant care giving role for a family member due to a sibling, parent or grandparent having an illness, disability, mental illness, addiction or language barrier (Charles, Marshall & Stainton, 2010). These children and youth take on a variety of physical, personal and emotional care giving responsibilities. They are found in the home, in health care waiting rooms or at their family member’s side, rather than at school, at a friend’s house or on the soccer field. Often times, focus and attention is on the individual with the illness or condition and this lacking of community supports leave the needs of the child in the home unmet and the role they play unrecognized. The Young Carers Program at Hospice Toronto has been working to give young carers in the Greater Toronto Area the recognition and support they need. Through the work done with families in providing home hospice palliative care over the last 25 years, Hospice Toronto recognized that the needs of young people affected by their family member’s condition were often overlooked. Since its implementation in 2010, Young Carers programs have been working to restore balance and increase psychosocial health. Based on the UK model, programs promote stress relief and relaxation, self-expression, and coping skill development and resiliency, while providing a break from their caring roles. For many, this is the first opportunity children have had to express their feelings and worries. Programs range from monthly Special Events, to social-therapeutic programs and workshops, to medical play and education. The YCP also runs a program just for sibling carers, and bi-annual Day Camps where up to 30 young carers come together for friendship, fun and learning, while being reminded that they are not alone. The Young Carers Program further recognizes older youth with the Youth Champions Committee, which engages current or prior young carers aged 16-24 with an interest in creating awareness and using their personal experience to help guide the program. As well as programs, YCP staff act as resources, advocates and supports for parents and their child where they need it the most. This includes in school where young carers are sometimes struggling due to their complex care giving role. Child participants in the program state that they no longer feel alone; that they did not realize that there was a positive side to being a carer, and that “at the YCP it is normal to talk about things at home because all the kids here understand.” Parents state that their children have been doing better in school socially and academically since starting the program and it has reduced the family’s overall stress level by having support for their child. On a national level, Hospice Toronto’s executive director is the co-chair of Young Carers Canada and together with colleagues across the country we are moving forward the agenda of young carers. This is an important step in ensuring that children and youth will get the supports and services they need to thrive as young people in special circumstances. To find out more about the Young Carers Program, visit www.ycptoronto.weebly.com or contact us for more information: Natalie Wilson, MA, CCLS Manager of Programs, Young Carers Program, [email protected] 4 HOSPICE TORONTO AT YOUR DOOR | Summer 2014 WHY I GIVE: STEVE NARDI by Molly Freeman LEGACY AND PLANNED GIVING WITH HOSPICE TORONTO Remembering Hospice Toronto with a bequest – providing a future gift in your will – is a lasting testimony to the unwavering generosity of our donors that will help us continue to provide home hospice palliative care and support for people living with serious illness or at end-of-life, and their caregivers and loved ones. Hospice Toronto accepts gifts of cash and securities, as well as other financial instruments such as life insurance and charitable annuities. Steve Nardi and Dena Maule at There’s No Place Like Home (photo: Glenn Bell) In 1995, Steve Nardi got the phone call that changed his life… His partner Aurele was dying of AIDS at only 38 years old, and Steve wanted to give Aurele the peaceful last days at home that he wished for above all else. A friend reached out to Hospice Toronto on his behalf, and soon Steve received a call from a Client Service Coordinator offering help. “I was overcome with emotion, in disbelief that a stranger would offer such help”, Steve recalls. “For someone to come into our home, not judging, only to help during Aurele’s final journey…the kindness was overwhelming.” In 1997 Steve began volunteering with Hospice Toronto, and hasn’t looked back. As a board member, committee member, and Hike for Hospice participant, Steve has worked hard to bring awareness to Hospice Toronto. He has also contributed as a monthly donor since 2011. “Over the past 17 years, I’ve watched Hospice Toronto grow, and have seen how people’s lives have been changed by the services offered to families free of charge”, says Steve. “By donating, I want to help plan for the future. With today’s aging population, people need to know about us.” “Hospice Toronto has made a tremendous impact on my life,” he says. “They were there for me during such a difficult time, and that is something I can never forget and never fully repay. And that’s why I support this organization in any way I can.” Talk to your family and seek expert financial advice. When considering a legacy gift, we recommend that you seek advice from professional financial advisors and discuss the matter with your family. Furthermore, because Canadian tax law changes frequently, there may be tax advantages to the way you make a gift to charity in your will. Be sure to consult a trusted financial adviser if you would like to maximize the tax benefits of a legacy gift. To request to speak with someone at Hospice Toronto about monthly donations, planned giving, or to share the news of your gift with Hospice Toronto, please contact us at 416-364-1666 THANK YOU 5 HOSPICE TORONTO AT YOUR DOOR | Summer 2014 AT YOUR DOOR CIRCLE OF DISTINCTION AWARDS The newsletter of Hospice Toronto At this year’s gala the Board of Directors was pleased to induct two new members into the Hospice Toronto Circle of Distinction, which honours individuals and organizations who have demonstrated an exemplary commitment to the ideals of hospice and palliative care. This year, the Circle of Distinction Award was conferred to Lorri Thompson and Brian Glasspoole. Lorri has been an active supporter of Hospice Toronto for the past 10 years, having served on the Board of Directors, as Board Secretary for 8 years and Circle of Distinction Chair of the Governance Committee. Lorri has winners Brian Glasspoole been an ardent supporter of our Hike for Hospice and Lorri Thompson efforts, annually raising dollars and awareness of the hospice services and she places among the top fund-raisers each year. Her continued contribution to Hospice Toronto helps to ensure the community has access to a caring, compassionate choice. Brian has served the organization for 12 years, including 10 years on the Board of Directors serving as Treasurer for one term and President for three terms, plus Chair of the Fund Development & Communications Committee. In addition to volunteering, Brian’s commitment to Hospice Toronto is evidenced by his many contributions to the organization’s financial health and sustainability through personal giving, facilitating in securing grant funding and sponsorship support from TD, and record-setting fundraising for the Hike for Hospice. Congratulations and thank you, Lorri and Brian! hospicetoronto.ca hospicetoronto @HospiceTO HOSPICE TORONTO 2221 Yonge Street, Suite 400 Toronto, ON M4S 2B4 Tel: 416.364.1666 | Fax: 416.364.2231 [email protected] | hospicetoronto.ca Charitable Registration Number: 13881 5618 RR0001 Executive Director Dena Maule Hospice Toronto Editorial Advisors Richard DeLisle, Belinda Marchese, Steve Nardi, Noni Regan, John Wong Editor Katie Saunoris Copy Editor Helena Kyriakou Contributors Molly Freeman, Siobhan McPartland, Natalie Wilson SHOUT OUTS Thank you to Bridget, Steve and Sybil for generously sharing with At Your Door. Thank you to 12thirteen Design Inc. (12thirteen.com) for graphic design and to Q-Print (qprint.ca) for printing services.
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